Life of a Prem Baby Blog


According to WordPress it has been over three years since the last blog post on Lifeofaprembaby – those 3 years have been full of ups and downs not just with Jenson but life in general.

A part of me feels a little guilty for not updating this blog for a few years but on the positive side it means us as a family are now 3 years down the line with some of our questions answered about Jenson and how his prematurity has effected him during that time.

No doubt if you were an original reader of my blog posts you will be asking yourself “why is she starting this up again?”

One reason is due to being inspired by an old school friend who has recently started up her own blog and has been nominated and gotten through to the finals of a national competition for blogs – for this I salute her.

Another reason for starting up again is that us as a family are now 3 years down the line with Jensons development and there is so much to tell!

Im sure there are many other parents who have recently been effected by the birth of a premature baby and are just as worried as we were when Jenson was born and how their baby will be effected by this growing up.

Over the coming blog posts you will all realize that yes I still worry about the smallest of things with Jenson, something I think all parents do but I hope what you will read on Lifeofaprembaby will help ease just a little of the worry that you may be feeling.

This blog is and always has been an outlet for me to express my emotions and frustrations on the lack of information and support for parents of premature babies and just like when I started this nearly 6 years ago I hope it helps anyone reading this.

For now Ill be sharing my older blog posts whilst working on some new ones. Future blog posts will be about Jensons first school year, first holidays, new friends and moving house.

Its been an adventure with Jenson and a rollercoaster of emotions since the last time I wrote so grab yourself a cuppa and enjoy Life Of A Prem Baby!

 

Advertisements

About 24weekers…

In December 2004, Karen & Alan Entwistle went for a 3D scan of their unborn baby boy… Jack Peter, as they had called him, was perfect…  the scan showed he was perfect… Karen felt good…

In the New Year of 2005, Karen was experiencing discomfort and sat up awake one night watching the baby channel – a program about babies being born prematurely due to the blood condition Group B Strep.  What she had seen played on her mind, and so when she next passed water, she did so in a clear glass…  The fluid was cloudy and she knew it just was not right.  This was the start of what would be the most dramatic roller-coaster of a year.

Alan took Karen to their local hospital.  She was told her ‘plug’ had come away and she was in premature labour.  They tried to slow things down but were unsuccessful and eventually Karen and Alan were told that Jack would be born within 24 hours… at just 24weeks gestation… And this was due to Group B Strep.

On January 3rd, 2005, at St Mary’s Hospital in Manchester, Jack Peter Entwistle was born.  He weighed just 1lb 6oz and was the size of his Daddy’s hand.

Karen and Alan had to fight every step of the way for Jack’s survival and for the survival of their own sanity.  Their experience is so aptly described as a ‘roller-coaster’, because as soon as it seemed Jack was making good progress, a problem would occur that would see his health deteriorate rapidly…

Thankfully, Jack was one of the lucky micro-preemies… he survived and is now a healthy and happy seven-year-old.  He is not without his problems – he only has 25% vision and has recently been diagnosed as autistic – but he’s an intelligent, fun-loving little boy.

In the months that followed Jack’s discharge from hospital, Alan started to develop the idea of writing a movie script based on their experience.  Within the next few years, Alan worked on the script and in August 2011 filmed the promotional trailer to share with the world and assist with raising the finance to make the movie, 24weekers.

One of the main aims of the movie is to raise awareness of the NICU experience and that babies born this early can and do survive.

The script has received some fantastic feedback from those who have read it so far, and as a result, we now have some great names attached to the project…

Full Monty and Coronation Street star Steve Huison is to play the quirky consultant ‘Eastman’; Star of stage and tv, Kate Coogan will be our leading lady ‘Karen’; Billy Elliot star Stuart Wells has the role of the handsome doctor ‘Enrique’; and Hollyoaks and Grange Hill regular Amber Hodgkiss is to play preemie mum ‘Alison’.

How you can give back

In order to fund the making of the 24weekers, the team behind it, which Alan & Karen spearhead, have created a ‘crowd-funding’ campaign on the successful US-based Kickstarter website, which launched UK projects on 31st October 2012.  The 24weekers project was launched by the team at 10.00 am on 31st October and will run for just 42 days with a target budget of £94,000.  This figure has been specifically calculated to be the minimum required to cover the full production of the movie, and if the full target budget is not raised, 24weekers will not receive a penny…

Anyone in the world can pledge any amount they would like (Min £1) towards the funding of the film and in return can select from a variety of rewards, ranging from a simple social media ‘shout out’, a copy of the new ebook ‘24weekers: The Story’, through to a non-speaking role in the film and dinner with the director and some of the cast!  There is even an opportunity for preemies to appear in the film itself.

Please take a look at the 24weekers Kickstarter project at http://www.kickstarter.com/projects/24wmedia/24weekers-a-new-feature-film-by-alan-entwistle

Here, you can view the trailer, read the pitch, take a look at the rewards and much more… including Pledging!

How do I Pledge?

  1. Click on the Kickstarter project link above
  2. Watch the trailer
  3. Read the pitch
  4. Click the green ‘Back This Project’ button
  5. Type in the amount you would like to donate – this can be absolutely anything you choose from £1 upwards.
  6. Select the appropriate reward
  7. Enter your card details
  8. Confirm!
  9. That’s it! You’ve just pledged! Thank you 🙂

Your card will be authorised but the funds will not be taken until 12th December 2012, provided that the project is successful


Yes I hear you cry I am back! Well for a while anyway, as as this post suggests this post is all about me feeling rather old and Jenson seeming to grow up so fast now.

Jenson is now 2 years and 3 months old, amazing really when you think back on my posts in 2010 describing my experiences of neonatal and the birth of Jenson, I cant quite believe that we are already 2 years down the line and at how much my little boy has changed.

So Jenson this month has started two mornings a week at Preschool! I cant quite believe it myself. Myself and my husband had come to the conclusion that Jenson was now at a point where personally we couldnt do anything more learning wise while Jenson was at home, and felt that going to preschool would hlep firstly his development and his social skills.

I must admit its taken me some time to accept the fact that do to this would mean someone else looking after Jenson other than family, something Ive always been a bit sceptical about, he’s my baby how can I trust someone else that I dont know to look after my precious little boy??

I also knew in the back of mind Jenson needed to go to Pre-School, yes the doctors tell you that a Prem baby will have caught up with others kids the same age as him by the time he is 2, but I guess I still dont quite believe that, and Im hoping that Pre-School will help to identify any problems that Jenson may have because of being born premature, if he has any at all. Having said all this, the first session I dropped Jenson off at this week, I came away very emotional and teary, where else Jenson was absolutely fine, his standard departure to me of “Bye, Bye, Lots (shortened version of love you lots), morning (shortened version of see you in the morning), was all he said to me and then he was off playing with all the brand new toys. Safe to say he indeed likes Pre-School.

For all of those of you wondering, Jenson is still very tall for his age, he was measured at his 2 year review, and even though he was quite on the 98th centile this time, he is well above average, as for his feet, he measures a size 7 in childrens shoes at the moment!

Jensons speech has really come on over the last few months too, where as before it would take Jenson a couple of attempts hearing the same word, now you can say it once and he will repeat it, perhaps not a good thing if you accidently stub your toe and curse out loud and Jenson is within hearing range!

Jensons hand/eye co-ordination seems to be really good too, he can play with his blocks and build towers and then he can pick up the smallest bits and place them in some sort of hole, for example he is very good and picking up bits of lint or crumbs that have fallen on the floor or have missed with the hoover!

We are still to potty train Jenson, to be honest he isnt really asking to go, or telling us before he does anything, I think we will let him decide when he wants to do it, on a plus note last week he did have his nappy off for 30 mins, wee’d on the floor, I quickly said to him “quick quick on the potty!” and bless him he ran, sat on his potty and actually done a wee!! So maybe he is getting close to being ready…

Right sounds as if my little man is waking up from his nap (now down to one nap a day, duration of about an hour!), so i will leave you with a more up to date photograph of my darling boy and me :0)Image

 

 

 


Yes I hear you cry I am back! Well for a while anyway, as as this post suggests this post is all about me feeling rather old and Jenson seeming to grow up so fast now.

Jenson is now 2 years and 3 months old, amazing really when you think back on my posts in 2010 describing my experiences of neonatal and the birth of Jenson, I cant quite believe that we are already 2 years down the line and at how much my little boy has changed.

So Jenson this month has started two mornings a week at Preschool! I cant quite believe it myself. Myself and my husband had come to the conclusion that Jenson was now at a point where personally we couldnt do anything more learning wise while Jenson was at home, and felt that going to preschool would hlep firstly his development and his social skills.

I must admit its taken me some time to accept the fact that do to this would mean someone else looking after Jenson other than family, something Ive always been a bit sceptical about, he’s my baby how can I trust someone else that I dont know to look after my precious little boy??

I also knew in the back of mind Jenson needed to go to Pre-School, yes the doctors tell you that a Prem baby will have caught up with others kids the same age as him by the time he is 2, but I guess I still dont quite believe that, and Im hoping that Pre-School will help to identify any problems that Jenson may have because of being born premature, if he has any at all. Having said all this, the first session I dropped Jenson off at this week, I came away very emotional and teary, where else Jenson was absolutely fine, his standard departure to me of “Bye, Bye, Lots (shortened version of love you lots), morning (shortened version of see you in the morning), was all he said to me and then he was off playing with all the brand new toys. Safe to say he indeed likes Pre-School.

For all of those of you wondering, Jenson is still very tall for his age, he was measured at his 2 year review, and even though he was quite on the 98th centile this time, he is well above average, as for his feet, he measures a size 7 in childrens shoes at the moment!

Jensons speech has really come on over the last few months too, where as before it would take Jenson a couple of attempts hearing the same word, now you can say it once and he will repeat it, perhaps not a good thing if you accidently stub your toe and curse out loud and Jenson is within hearing range!

Jensons hand/eye co-ordination seems to be really good too, he can play with his blocks and build towers and then he can pick up the smallest bits and place them in some sort of hole, for example he is very good and picking up bits of lint or crumbs that have fallen on the floor or have missed with the hoover!

We are still to potty train Jenson, to be honest he isnt really asking to go, or telling us before he does anything, I think we will let him decide when he wants to do it, on a plus note last week he did have his nappy off for 30 mins, wee’d on the floor, I quickly said to him “quick quick on the potty!” and bless him he ran, sat on his potty and actually done a wee!! So maybe he is getting close to being ready…

Right sounds as if my little man is waking up from his nap (now down to one nap a day, duration of about an hour!), so i will leave you with a more up to date photograph of my darling boy and me :0)Image

 

 

 


Things have been somewhat busy since my last post at the end of last year, and I have just not found the time to write anything for my blog.

As Jenson has gotten older he has taken up more and more of my time and coupled with me going back to work part time I just havent found the time to update my blog. I apologise to my readers that were once loyal and I will now try to update and keep you posted as Jenson progresses. I think my main reason for starting my blog again is due to the fact I recently saw an article about 3 baby boy triplets that were born at 24 weeks, and they ALL survived! An incredible story and simply amazing that they all survived, reading the story really made me well up and reminded me of just how lucky me and my husband are to have Jenson here today.

The charity Bliss hasnt been fair from my mind either, where I am working part time, they hold a dress down day once I month and staff can nominate a charity. I decided to nominate Bliss as I felt they had helped me with advice on caring for Jenson in the early days and I felt this was a very worthwhile cause to donate too. All the nominations get sent to all staff and then we all vote. And I was pleased to see that the majority of staff agreed with my nomination and last month our dress down day was in aid of Bliss.

So onto my little man, Jenson.

Jenson is now 18 months old! Can you believe it?! Time has just simply flown by and now I spend less time concerned with the fact that he was premature and more time chasing him round the house and telling him “NO”.

Development wise he has improved in leaps and bounds, Jenson started walking at the beginning od December last year and now runs round the house with Daddy chasing him. His intelligence just amazes me at the moment, he is learning things so quickly and picking things up so fast that it astounds me.

Jenson had his last related prematurity appointment a few weeks back, to do with his earring and Im pleased to say this came back all okay, in fact the nurse said to us that his behaviour was alot more advanced for a normal 18 month old! I dont think she realised how much this little bit of information pleased me, hearing a complete stranger telling my that my little boy is quite clever was brilliant.

As for potty training, well I think this is one thing that he will be a little behind on, he is showing no signs of wanting to do this yet so I think this is best left for a while yet.

And as for Jensons height, well he has certainly taken after his Daddy. According to the graph in his red book, Jenson will be the tallest out of 100 children! I can see future school uniform trousers are going to be a nightmare to buy!!

So that was just a little update on my little boy.


Last week saw Jensons One Year Review, something I felt quite anxious about to be honest. I know medical professionals and friends and family have told me that Jenson has caught up and that he is doing well for his age considering he was born 8 weeks early, but there is always that little thought in the back of my mind that Jenson may still be a bit behind. We still go to Baby Club (well more of a toddler group now) every week, however all the other children are either younger or older, so up until Jensons review I had no one to compare him to.

So now with Jenson at 13 months I would finally have an opportunity to see him interact with other children the same age.

Im not sure what I expected at the review, but what I hadnt expected was it to be in a group format, I naively thought it would be a one to one session, something I was a little disappointed about. We arrived at the review and sat down with the other mums and their children, toys had been placed in the middle of the group for the kids to play with. And then it was a case of the Health Visitor asking if we had any concerns, them answering your questions, them then asking us all if the kids were trying to talk, were they walking, how were they feeding, had we had any temper tantrums (at which point I shouted yes! Jenson has an evil temper and takes no notice of me when I tell him off! Just talks back at me in some gibberish that I can understand lol), and the Health Visitor assured me that this was normal and that the tantrums would most likely get worse as he approaches the age of 2!

All the while I was talking to the Health Visitor Jenson has gotten bored of the toys and has decided to explore the room that we are in, so while Im trying to concentrate on what Im being told I can see Jenson out the corner of my eye standing at a table throwing all the leaflets that are on top of it onto the floor! Then he decides that he wants to crawl under ALL the chairs that everyones sitting on, followed by trying to escape out of the door of the room we are in, whilst also crawling over the other babies because they are in his way!

After this excitement it was time to get Jenson weighed and measured, Jenson was one of the last to be done, and during our wait another baby wasnt at all happy about being measured and was crying his protest, Jenson thought this was all just a game and so every time the other little boy screamed Jenson decided to copy him! All I could hear as Jenson shouting “Arrgggggggggggggghhhhhhhhhhh” lol

I eventually managed to get Jenson on the changing mat to be weighed, I sat him on the scales, and his weight as of last week is now 20pound 12 ozs, in comparison at the same point last year he weighed only 7pound 5 ozs. Next came the time to get him measured, now as everyone who knows us knows Jensons Daddy is rather tall, at 6ft 4ins, and Ive had no end of people tell me how “tall” Jenson appears to be. The measurement taken at his review, only confirmed what everyone had been saying, Jenson is on the 98th Centile line for his age, i.e. out of 100 babies born at the same time, same age as him on 2 babies would be taller than him!!

So by the time Jenson is a teenager Im not only going to have neck ache from looking up at his Daddy, but also from Jenson has well!

All in all I feel the review went well, I was pleased to see that Jenson was doing the same things as the other kids his age, and you couldnt tell that he had been born premature.

Now if only I could get him walking……


Jenson now has a total of 8 teeth and we want to get him into a routine of brushing his teeth every day. We started doing this once his first tooth had cut through, and he was absolutely fine with it, but over the last few weeks Jenson has started not to like the whole brushing his teeth routine!

Something that used to take about a minute to do, now takes about ten, as I chase him round the room with toothbrush in hand trying to clean his teeth! Jensons trick is to turn his head away or bite down on the toothbrush, making it an even more difficult task!

Anybody have any tricks I can use to encourage Jenson to make it more enjoyable??

November 2017
M T W T F S S
« May    
 12345
6789101112
13141516171819
20212223242526
27282930  

Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Join 642 other followers

Where my readers are from

Bliss

www.bliss.org.uk

Twitter Updates

%d bloggers like this: